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Wednesday
Jan232013

Treatments ... Appointments ... Prayer

I haven’t shared a lot with friends about Luke’s treatment and therapy.  I guess my thinking is: it’s Luke’s life and I don’t want to put too much “out there.”  This past week we had a follow-up appointment from Luke’s recent treatment.  As the Dr was going through everything, I couldn’t help but wonder if she was talking about another child or someone else’s life.  We were discussing what’s the next step for Luke.  What’s best for Luke.  To make a very long story, short; we are being referred out of state.  We will leave in March. 

Oh, how this referral brought back a flood of memories … even the same month.  When we were being referred to the Mayo Clinic in Rochester, Minnesota, I remember really dizzy all the time – like the world around me was spinning out of control, but I was standing still watching it all whirl around me.  I couldn’t make myself cry any tears – I was numb all over.  It was March 2011. It was going to be “our answer.”  It was the trip that would cure Luke and we would bring our little boy home – healed- healed completely.  During that trip, we got answers.  Answers that we were not ready for; answers that broke our hearts; answers that were for another family, not ours.  The Dr looked at us and said, “Your son may not walk, may not talk, may not recover much more than this.  I just can’t say.  Children surprise us all the time.  However, the prognosis isn’t great.  It’s not what you want to hear, but be blessed that you have a child.”

Ouch. 

I remember looking at that Dr eye to eye with tears flowing down like heavy, uncontrollable  rain and challenged, “Then prepare yourself for a surprise because this isn’t good enough for us.”

God has worked through Luke in so many ways – big and small.  God has shown our family that He knows the plan He has for Luke.  MRIs, specialists, and out of state referrals can’t compete with our Father who is all-knowing – our Great Physician.  We have watched small miracles like little fingers moving ever so slightly – we have watched bigger miracles of feet walking.  God has been so good to our family.  Blessing us with miracle after miracle on His time, which has always come at the perfect time.

Luke along with our “unit” will be traveling again … in March … again, out of state.  This time, my world isn’t spinning around me like a blur.  This time I can let my tears fall freely.  This time will be different.  I know this trip will be different because God has given our family all the answers we desire; all the answers we need.  God has shown us that Luke IS our little boy – no matter what Drs say, MRIs say, or even the people in the world around say – Luke IS our sweet, little boy.  I go with a new confidence and a peace within my soul. 

Even though we aren’t putting the name or location “out there” for everyone, we are seeking prayer from anyone and everyone.  We believe in prayer.  Please pray for safe travel, please pray for the Drs that will evaluate Luke, please pray for God to be ever-present in the minds of the specialists we will see … please pray.  You can join us now … it’s never too early to talk to God.  If Luke is brought to mind, please pray for this trip.

As always – thank you –

I wanted to include this silly video clip of Luke.  This is Luke at Wolfson Hospital before his last treatment.  He’s such a silly boy with a giggle that melts my heart.  You would never know how incredibly scared and anxious he was before his treatment  - a treatment that physically hurts and one he dreads severely.  Luke has nightmares weeks and weeks before & after treatments … often cries during the day just thinking of it.  Luke will often complain of stomachaches because of his anxiety of treatment.  Recently, he was asked if he had 3 wishes what would they be: Luke responded with 1.  Everyone should know Jesus; 2.  I wish I could play all day everyday with my friends; and 3.  I wish I didn’t have any more treatments.  For a little boy who lives with pain, Luke refuses to complain.  We love this glimpse of Luke and we hope you do also.  Luke is one sweet boy who loves to laugh.

 

 

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Reader Comments (11)

We will continue to pray for sweet Luke and his incredibly strong and loving family. Thank you for always sharing the incredible blessings of God's constant presence in your lives - your walk is such a source of strength and inspiration to all around you.

January 23, 2013 | Unregistered CommenterSusan Donnell

I will be praying.

January 23, 2013 | Unregistered CommenterThe Brown's

Breaks my heart; praying for all of you, Brandi.

January 23, 2013 | Unregistered CommenterCarrie and family

Will keep you all in our prayers. We love you.

January 23, 2013 | Unregistered CommenterLacey

I will continue to pray, For The Lord knows his plan for us. I will pray for peace, strength and continued faith for you, your support staff and Luke. <3

January 23, 2013 | Unregistered CommenterSue

Brandi.....our hearts go with you as you travel to receive help. We thank God for His blessings to Luke and your family thus far. We will continue to lift each of you to our Father. May you always feel His presence very near.
We love you.....Pat and Tom Enteman

January 23, 2013 | Unregistered CommenterPat

Luke and your sweet family remains in my prayers. xxoo

January 23, 2013 | Unregistered CommenterJoani

While I do not know Luke and his family, I first learned of this child of God through Shelley our daughter and have since thought about ya'll and offered prayers and supplications on Luke's behalf. God bless each of you.

January 23, 2013 | Unregistered CommenterBill C.

Psalm34:4 is a favorite and it so applies to sweet Luke and his unwaivering faith.
"I sought the Lord, and He heard me, and delivered me from all my fears."

Rest assured that the Lord hears the prayers for Luke and your family. Our future may lookfearfully intimidating at times, yet we can look up to the Engineer of the Universe, confident that NOTHING escapes His attention or slips out of the control of those strong hands. God's blessings on your travels and the wondrful relationship that you will develop with the Dr's and how blessed they will be to meet sweet Luke and your family.

January 23, 2013 | Unregistered CommenterGayle R

Still think of you guys often and wonder how it is all going. Thank you so much for the update. I wish you the best of luck and will send as many prayers as I can for more answers and treatments for Luke.

January 23, 2013 | Unregistered CommenterHeather West

We will be lifting your family up in our prayers before Christ. Asking for nothing less than a complete healing of Luke aka Superman.. God Bless Akerstroms..

January 24, 2013 | Unregistered CommenterThe Boyett's

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